C’est parti !

Third-party backing Department of Veterans Affairs Funding support (NPO, NGO, Charity or other) Not applicable (N/A) Resellers Tobii Dynavox and Partners

Demande de financement par l'intermédiaire d'un organisme Boundless Assistive Technology Accessibility Services, Inc ALS Association Argentina Boston Children’s Hospital Boundless Assistive Technology Calvary Health Care Bethlehem Department of Veterans Affairs Guernsey Motor Neurone LBG ImproveAbility Les Invincibles-All United MND Association, UK Motor Neurone Disease Association of Queensland Inc Mouth Cancer Foundation Picomed Shelton Technologies and Resources Team Gleason Tobii Dynavox and Partners The ALS Association Verein ALS Schweiz Zyteq Not applicable (N/A)

Sélectionner une clinique (*)

Sélectionner un partneraire (*)

Sélectionner un chapitre (*) DC, MD, VA, WV, Northern OH, Western PA and KY

Terms of support: Support customers of Accessibility Services, Inc., including veterans funded by the Department of Veteran Affairs.

Accessibility Services, Inc. (ASI) is the provider of the autonoME, a combined augmentative and alternative communication aid and environmental control unit (ECU) designed specifically for individuals with severe disabilities, progressive diseases and spinal cord injuries. ASI’s proprietary autonoME has become one of the most popular hospital and residential products on the market. The autonoME seamlessly integrates full environmental control, augmentative and alternative communication (AAC) and computer access (Windows 10) into one single package. Founded in 1991 with a primary vision to help veterans, ASI has since expanded its mission to address the needs of all severely disabled individuals with a special focus on the unique and exceptional needs of the quadriplegic community. Founder Fred Thompson’s philosophy, “we start with the customer and work backwards” has inspired ASI’s research and development engineers to stay one step ahead of technology, ensuring the company continues to deliver the most advanced and progressive solutions on the market. For more information, visit http://accessibilityservices.com

Terms of support: Funding support of the service for patients diagnosed with ALS and living in Argentina.

Asociacion ELA Argentina is the first and only ALS/MND organization in Argentina. This is what we do: - Provide information, care, support, guidance and counseling to the community affected by Amyotrophic Lateral Sclerosis (ALS); - Protect their rights, stimulate and promote research; train health professionals and persuade government authorities to implement policies in search of a cure for this degenerative and terminal disease; - Provide logistical assistance to improve the comfort of life for people living with ALS; - Offer specialized medical care and facilitate new treatments for the different disease stages.

Terms of support: Support patients of the Boston Children’s Hospital ALS Program who, through assessment outcomes are candidates to bank messages and use them to create a my-own-voice.

About the Boston Children's Hospital: The Augmentative Communication Program at Boston Children's Hospital is internationally acclaimed for its work with children and adults who are non-speaking or whose speech is severely impaired. The Boston Children's Hospital The program provides comprehensive, state-of-the-art evaluation and treatment for children and adults with congenital or acquired disorders affecting expressive communication, comprehension and computer access. This includes children with autism. The ALS Augmentative Communication Program is a unique full time Augmentative Communication/Assistive Technology Program focused on supporting people with ALS, proactively but at any time during their life with ALS. Boston Children’s is the pioneer and was the first organization to iniate a program that supports ALS patients to bank messages and then have access to those messages in their own voice using digital technology. Since 2018, the messages banked can be used to ‘create your own voice throughout the my-own-voice program. Boston Children's ALS Augmentative Communication Program will assist each ALS patient followed by the program and supported through the program’s Message Banking™ Process and take advantage of the "double dipping" process to create a my-own-voice. They will then work to select and support the most appropriate technology that will allow a patient to combine message bank and voice bank in your daily life. .

Terms of support: Support customers of Boundless AT, including veterans funded by the Department of Veteran Affairs.

Boundless Assistive Technology proudly offers an unparalleled selection of the world's best Assistive Technology and functions as a full systems integrator. With over 3,000 AT products available, complete PC systems, and tablet bundles, our access solutions meet the needs of virtually any ability. For over a decade, our company has served the assistive technology community by delivering technology solutions, comprehensive support, and services to home users, government agencies, healthcare providers, and educators.

Terms of support: Support customers of Boundless AT, including veterans funded by the Department of Veteran Affairs.

Boundless Assistive Technology proudly offers an unparalleled selection of the world's best Assistive Technology and functions as a full systems integrator. With over 3,000 AT products available, complete PC systems, and tablet bundles, our access solutions meet the needs of virtually any ability. For over a decade, our company has served the assistive technology community by delivering technology solutions, comprehensive support, and services to home users, government agencies, healthcare providers, and educators.

Terms of support: This is available to people living with motor neurone disease (MND) living in Victoria, Australia. (voice banking may also be available to people with other progressive neurological diseases seen by the speech pathology team at Calvary Health Care Bethlehem)

Calvary Health Care Bethlehem in Caulfield is recognised as a leader in its two areas of expertise; as a Statewide provider for those with Progressive Neurological Disease (such as Motor Neurone Disease and Huntingtons’ Disease) and as a Specialist Palliative Care Service. Our services are vital to the Victorian community, supporting over 4000 patients and their families each year Known for our innovative holistic model of care, our multidisciplinary teams work in collaboration with the patients GP, community health, aged, disability and other health services, to ensure that care is easily accessible and coordinated across our hospital inpatient service, centre-based clinics, day centre and at home. About the Department of Veterans Affairs: The Veterans Administration provides medical services to all US military veterans. Website: https://www.va.gov

Terms of support: This is available to people living with motor neurone disease (MND) in the State of Guernsey.

Guernsey Motor Neurone LBG offers care and support for people with Motor Neurone Disease, their carers and families living within the Bailiwick of Guernsey (Alderney, Sark, Herm).

Terms of support: We support customers of ImproveAbility as well as Veterans funded by the Veterans Administration.

ImproveAbility is an Assistive Technology consulting and sales company. We supply a full range of assistive technology for clients of all ages and disabilities. One area that we work in is AAC for people with ALS and other speech disorders. For more information, please visit our website at https://www.improveability.com

Terms of support: Financement du service pour un nombre d'utilisateurs (par an) diagnostiqués avec une SLA et vivant en France.

Nous sommes 3 hommes touchés par la maladie de Charcot à 3 stades différents. Cette maladie qui touche 5 personnes par jour en France au hasard, atrophie les muscles sans qu'on puisse l'arrêter. Elle agit à grande vitesse et finit sa course en s'attaquant aux muscles respiratoires (durée de vie de 3-5 ans). Ce qui nous réunit c'est une furieuse envie de vivre, d'aimer, de créer, d'animer et d'embarquer un maximum de personnes dans cet élan de vie et de solidarité. Les projets que nous mettons en place ont un double objectif : financer la recherche (pour que les générations futures aient enfin un remède) et partager ensemble des moments sportifs, conviviaux et divertissants.

Terms of support: This is available to people living with motor neurone disease (MND) or Kennedy's disease and living in England, Wales or Northern Ireland.

About MND Association: The Motor Neurone Disease Association is the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning. We offer a life-line through accurate, professional, accessible information and practical day-to-day support to enable people with MND to live with their diagnosis and achieve the best quality of life possible.

Terms of support: This is available to people living with motor neurone disease (MND) and Queensland.

The Motor Neurone Disease (MND) Association Queensland is a non-for-profit organization dedicated to supporting and helping people with MND maintain their quality of life in Queensland Australia. Our organization provides people with MND an integrated multidisciplinary service in the form of allied health services, equipment hire, and support coordination.

Terms of support: This is available to people at risk of losing their voice due to surgery or treatment for head and neck cancer living in the UK.

The Mouth Cancer Foundation is a charity dedicated to raising awareness and support for those suffering from or at risk of mouth cancer, throat cancer and other head and neck cancers, as well as providing assistance and information on living with mouth cancer for families, friends and carers. Our mission is to save the voices of mouth, throat, head and neck cancer patients at risk of losing them due to surgery or treatment and give back the power of speech in our latest initiative.

Terms of support: This is available to people living in Sweden.

Picomed AB is an active reseller and advocate of My-Own-Voice in Sweden, with a broad range of Technical aids in the segments of AAC.

Terms of support: We provide on site and remote training to make sure customers can use the technology purchased. We provide this assistance for the life of the product.

Shelton Technologies and Resources, LLC is a vendor of Assistive Technology Products mostly along the lines of Alternative and Augmentative Communication. We have been in business for 21 years.

Terms of support: Anyone living in the USA with a confirmed diagnosis of ALS who is not eligible for support from another organization.

About Team Gleason: Team Gleason is committed to improving life for people living with ALS by delivering innovative technology and equipment, as well as providing and empowering an improved life experience.

*If you are interested in having the Team Gleason Foundation fund your voice recording please visit their website to learn more - https://teamgleason.org/pals-resource/voice-message-banking/

You must apply on the Team Gleason website before completing this Acapela application.

 

Terms of support: We provide on site and remote training to make sure customers can use the technology purchased. We provide this assistance for the life of the product.

The ALS Association is an American nonprofit organization that funds global amyotrophic lateral sclerosis (ALS) research, provides care services and programs to people affected by ALS through its nationwide network of chapters. About the Tobii partners. Our partners are local experts across Europe and the rest of the world.   website : https://www.tobiidynavox.com/blog/partner

Terms of support: Das Angebot ist erhältlich für ALS-Betroffene mit Wohnsitz in der Schweiz.

Der Verein ALS Schweiz wurde 2007 unter dem Namen ALS-Vereinigung.ch von einem inzwischen leider verstorbenen ALS-Betroffenen und einer Hinterbliebenen eines ALS-Patienten gegründet. Die Kernaktivität ist die direkte Unterstützung von ALS-Betroffenen und ihren Angehörigen. Der Verein bietet finanzielle Hilfe für in Not geratene Betroffene an, stellt leihweise technische und elektronische Hilfsmittel zur Verfügung und steht den Betroffenen und ihren Nächsten mit Rat und Tat zur Seite, um ihre Lebensqualität so gut es geht, zu verbessern. Dies beinhaltet unter anderem eine ganzheitliche und persönliche Beratung durch ALS-Fachpersonen sowie regelmässige Treffen für Patienten und Bezugspersonen.

Terms of support: This is available to people living in Australia.

Zyteq is a reseller of my-Own-Voice in Australia. We offer support and training from Speech Pathologists and Assistive Technology consultants for this product along with a range of specialized electronic technology.

Terms of support: Funding program serving serving Maryland, Washington, D.C., Virginia, South Carolina and West Virginia.