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Boston Children’s Hospital

Boston Children’s Hospital is the pioneer and was the first organization to initiate a program that supports ALS patients to bank messages and then have access to those messages in their own voice using digital technology.
The ALS Augmentative Communication Program is a unique full time Augmentative Communication/Assistive Technology Program focused on supporting people with ALS, proactively but at any time during their life with ALS.

About

The program provides comprehensive, state-of-the-art evaluation and treatment for children and adults with congenital or acquired disorders affecting expressive communication, comprehension and computer access. This includes children with autism.

The Boston's Children Hospital has selected 'my-own-voice' solution as part of its Augmentative Communication Program to allow patients to record a digital version of their voice that will be used on AAC devices.



Terms of support

Support patients of the Boston Children’s Hospital ALS Program who, through assessment outcomes are candidates to bank messages and use them to create a my-own-voice.

More information about the ALS Augmentative Communication Program here .

Since 2018, the messages banked can be used to create your own voice throughout the my-own-voice program. Boston Children’s ALS Augmentative Communication Program will assist each ALS patient followed by the program and supported through the program’s Message Banking™ Process and take advantage of the “double dipping” process to create a my-own-voice. They will then work to select and support the most appropriate technology that will allow a patient to combine message bank and voice bank in its daily life.

The goal is to support communication and daily functional needs, sustain personal control and dignity, facilitate continued social and vocational goals, and maintain quality of life through thoughtful implementation of solutions ranging from high technology to quick-access/low tech tools and strategies.

Check out the video made by John Costello, Director of Boston Children’s Hospital’s Augmentative Communication Program, using and commenting on his own voice, created with ‘my-own-voice’.